AccessCNY’s advocacy efforts helps individuals with disabilities stand up for their rights and needs. Our dedicated group of staff and volunteers meets regularly with representatives of local, state and federal government to educate our elected officials on important legislation and regulations that affect people with disabilities and the community as a whole.

The US Census

Completing the US Census is an important part of living in a democracy. By order of the Constitution, the Census takes place every 10 years and its goal is to count every person. 

The data gained from the Census is used to make important decisions across the government. From helping to determine the number of Congressional seats each state gets to deciding how to allocate federal funding. 

The importance of completing the Census cannot be overstated. In New York, each person who doesn’t complete the Census results in a loss of about $2700 in funding for our roads, hospitals and schools. 

If you haven’t completed your Census yet, please do so by going to

Have questions or need help completing your Census? Contact our Census Help Line by texting or calling 315-551-6754!


Do you need help checking your voter registration status, registering to vote, etc.? We have you covered! Just click here. 

Health Care Decisions for Individuals with Disabilities

AccessCNY works with family members to ensure the needs of their loved ones are being met.

A new booklet on health care decisions highlights different options and procedures for making difficult end of life decisions for individuals with disabilities. The information is provided as a resource for families to begin thinking about these decisions before facing a terminal illness of a loved one. The booklet covers: health care proxies, medical decisions for individuals who lack capacity, Medical Orders for Life-Sustaining Treatment (MOLST), requests to withhold or withdraw life-sustaining treatment and non-hospital Do Not Resuscitate (DNR) orders. The guide serves as a summary of already existing regulations and is meant for informational purposes only.

Download the Health Care Booklet

How To Get Involved in Advocacy

1) Contact your elected officials and let them know where you stand on key issues like:

  • accessibility
  • stigma free mental health care

Find out who represents you.

2) Join an advocacy group. To find a group near you, please contact Ashley  Palin  at  Ashley.Palin@accesscny.orgIMG_3054_web

3) Stay informed. Keep an eye on the media to learn about developments in disability issues. Check back to AccessCNY’s website frequently, as we will post interesting links here.

4) See a problem in your community? Let us know what matters to you. Contact us.

Important Links

Info on New York State Medicaid

Americans with Disabilities Act

Disabled in Action of Greater Syracuse, Inc.